Me and Diego
Two weeks ago I attended ICI in Maryland. ICI means Institute
on Communication and Inclusion. Making learning about autistic means to
inclusion pleases me. I met Diego, his mom Edlyn, and his helper. It was fun
hanging out. One of my favorite days was when I got to type with Michael and Camille.
We typed about the ABCs of inclusion. Inclusion is so important. Elizabeth
cared about our group and loved what we wrote. I am pleased she wanted to talk
with me and held my keyboard even though she never met me before. She had confidence
in me and her ability to talk with me.
Me and Elizabeth (practicing independence)
Good meaningful lectures peacefully made
me take note of what I would like to achieve too, like doing a talk. I would
also like the ability to type more independently. Lots of time and practice
needs to be invested to get good. Part of my learning was getting to practice
more stressful environments. I want to get better at sitting quietly and not
being disruptive. I get mad at myself for being too noisy when stressed. Peace
often escapes me in crowds and loud places. I was managing as best I could. Life
day to day can be unpredictable. Sometimes I am in more control of my body.
Other days I can hardly feel my body. It is the worst feeling to feel
weightless. I hate being practically disembodied. It becomes a nightmare. Stimming
helps feel my body again.
Part of a big drum circle
On day 1 I could not stay calm. I needed
to stim badly to feel my body. Help came from Casey. She gave me a massage and
sang to me. Casey saved my day. I sat more calmly after that. On day 2 I had my
best day. I loved that I could participate and meet new friends. Making friends
was the best part of the conference. I will remember talking to Diego, Michael,
Camille, and Elizabeth as the highlight of the week.
Michael, Camille, and Me
ABC's of Inclusion
by Philip, Michael, and Camille
Actual
inclusion opens doors.
Be patient
with us.
Caring
people make it successful.
Don't give
up.
Excellent
expectations.
Friends,
need I say more?
Give us lots
of patient encouragement.
Hear us when
we spell.
In day, talking
to friends opens my world.
Just like
typically functioning,need support.
Keep
believing in us.
Learn
challenging subjects.
Must be
proud.
No baby
talk.
Open hearts
please us.
Praise our
achievements as they are yours as well.
Question
your assumptions.
Remember we
are just like you.
Spelling is
our way out.
Treat us
with respect.
Understand
totally intelligent and eager to learn.
Voices must
be heard.
Wait for us
to finish our thoughts.
Xylophone
can't make open words and it still is in the orchestra.
You are
needed for our success.
Zero
tolerance for non believers.
Philip, this is beautiful! Thank you for sharing this with us. I am a believer!
ReplyDeleteIt was nice to see you there.. I know it's a very busy space, with lots going on, but so very happy to hear that it was helpful AND enjoyable, too, Philip!
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