I was not going to blog tonight since it is the weekend and
weekends are for relaxing and being lazy, but after my evening lesson and talk
time with Philip, I just had to write.
My daily lesson and talk time with Philip is something I try
never to miss, even on weekends. It is
something that had to become a daily habit or discipline. It wasn’t easy at first. In the past, I would try very hard to work with Philip, only to eventually give up because we would both get so frustrated at each other. This time it had to be different. During
our initial RPM learning times, Philip would often try to escape from his chair. He’d stand on the table and I would wrestle him down all the while saying, “sit down,” over and over till my
voice was the loudest thing in the house.
My son would pick the wrong choice as if he were doing it on purpose
just to get me to give up. In the
beginning, there were days I dreaded this learning time because I knew it was
going to be the most challenging and grueling part of my day.
But something happened as we kept on going. Things were starting to click. I was getting into a rhythm about how to
teach and ask questions. Philip broke
out of his resistance and started responding and answering correctly. At first it was from choices I wrote
down. Then it was from spelling when
given a portion of the alphabet to spell a predictable answer that I had in
mind. From there it was from a 26 letter
stencil. Then I started asking open
ended questions. Again, there was a
roadblock and he couldn’t do it for many months, even though he could for
Soma. Again, we’d push through, trying a little each day. Eventually there was a one word answer. One of the earliest open ended responses he
gave me was on Valentine’s Day. I said, “On Valentine’s Day we celebrate love. Who do you love?” Hoping he would spell Mom, he instead spelled
S-U-G-A-R. Oh well, I was just so happy
he could answer something original and from himself!
After Soma came to Buffalo in May, Philip demonstrated he
could spell in sentences, even paragraphs, and stories with Soma. We came home and built on his previous skills,
till eventually, he started expressing himself to me in sentences and in
complex thought!
Here’s what we did tonight.
We started with a lesson on energy from Philip’s Science workbook for 4th
grade. He answered factual questions
about electricity, fossil fuels, and different types of energy. He even got 100% on the True/False quiz at
the end of the chapter. We then read a
poem Tito Mukhopadhyay (Soma’s son) wrote about the Niagara Falls. I asked Philip if he wanted to write a poem,
to which he responded N for no. I asked
his impression on his visit to the Falls and he spelled “I enjoy it.” We then did some multiplication.
We finished with my favorite part of our talk time: open
ended discussion. I asked Philip, “What
are you thankful to God for?” His
answer: AUTISM. I could not believe
it. I asked, “Did you mean to say you
are thankful for having autism?” Y (for
yes), he pointed to. “Tell me in what
way you are thankful for autism," I implored.
This is what Philip spelled: ANYTHING IS GOOD IF YOU SEEK GOD.
I have much to ponder about tonight and will blog about it
tomorrow. I am so thankful for Philip
and for him teaching me so much.
Soma and Tito with the RPM Buffalo Families.
this blog was terrific! He is teaching all of us for sure. He has come such a long way from when he told you he wanted a radio for Christmas to this!! His last thought is something for me to write down, throw up on my bathroom mirror and recite over and over again. Anything is good if you seek God! <3 you guys!! ~~ Denise
ReplyDeleteThank you! We are starting down this path right now... my son constantly chooses the wrong answer! He like Ido, showed he could type with me holding his hand, so one day I asked him why he chose the wrong answers; he said "I could do it right if I tried, but I like to make mom mad!" We are pushing through the tough times, your blog inspires me to keep going forward!
ReplyDeleteHi Trista! I'm glad our blog is helping you. I checked out your blog and you are a great mom for persisting in finding a way for your son to communicate. It is definitely hard work but so worth it! I would agree with your last post that I have done as much learning, if not more, than my son whom I am trying to teach. This autism journey is truly is a win-win, learning together relationship in which we are equally student and teacher. God bless the both of you!
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