Showing posts with label RPM. Show all posts
Showing posts with label RPM. Show all posts

Thursday, August 24, 2017

Open Communication

Holly writes:
I would love to know how easy or difficult it was for you to begin open communication after mastering pointing to letters or typing. Thanks!

To Holly,

Open communication was a hard-won victory for me. I longed to communicate openly all my life. I found it impossible until I learned RPM. I am going to tell you why open communication is hard. Talking takes all the energy I have. Day to day I use language in my inner thoughts. I hear my own voice. It sounds perfect in my own mind. Getting my thoughts out is lots of hard work. My mouth won’t say my thoughts. I badly want to talk but I lack what it takes to translate thoughts to speech.

I had to learn to spell my thoughts. Spelling is easier because I can point better than I can speak. But it was hard to learn. I had to learn how to control my body to stay focused through onslaughts of other competing thoughts and every sensation. I learned to spell on a stencil and how to think more thoughtfully so I could peacefully make opinions and describe my feelings. At first I learned to spell answers to facts about subjects. Then I learned to use my reasoning to solve problems. Back when I was learning I had a hard time not being distracted. Stims and impulses fought with my brain to get my body to disobey. I needed my mom’s presence and prompting if my brain were to win. I tested my brain to make my body stronger at following commands.   I made myself listen to my mom to keep myself focused.


Going from an academic subject to open-ended communication was like learning to ride a two-wheel bike. I needed support from the training wheels to learn the motion of riding the bike. Then I needed confidence to know I could do it. When I first rode a two-wheeler I was completely shocked. I was not sure I could ever do it but once I did it, it seemed so natural. That is how open communication happened for me.

Open communication is different from all other responses. Recalling facts is easiest. It only takes retrieving them from their storage. Reasoning takes letting a few thoughts out of storage and joins them together. Open-ended communication involves being able to extract a thought from an ocean of tangled thoughts. Some thoughts are silly. Some are annoying. Some are sad. The thought that wants to be told must untangle itself slowly and with gentleness. I make my thoughts come out by typing letter by letter because I must slow down to get my words out. I am patient because being quick leads to impulsive answers I don’t mean to make. I think I will talk someday but I have to be patient.  


Open communication is what allows me to be free in my soul. I can be understood. I can now let people into my life. I can exchange ideas with them.  I can advocate for myself. I can make goals for myself.  I can teach. Open communication lets me be free to live.

Philip

Talking with fellow blogger friend Rhema

Copyright 2017 Philip Reyes.  All rights reserved.

Thursday, May 11, 2017

Early Days of RPM

Sharolyn wrote:  I want to hear about the early days of RPM and what made it click for you.


To Sharolyn,

Thank you for your question. My early days of RPM were very difficult. RPM is a great learning method but it was really hard to start. I started when I was 9. For so many years I was assumed to have an intellect of a toddler. I was not challenged to engage my mind. Instead I had my senses to entertain me all day. At school I learned nothing I did not already know. So I taught myself to read the signs on the wall. I stimmed my life at home by tapping my hand repeatedly on everything. It helped me feel alive and not just a passive object taking up space. I could escape in my mind to other places where I would have a voice. 

I remember my first time doing RPM with Soma as being the most significant moment in my life. Soma was the first person to believe in me. Her ability to see my intelligence despite my outer appearance allowed me to follow her teaching and respond as my mind wanted. I felt so much joy from being liberated from peoples’ assumptions I was not smart. 

When I came home I was frustrated I could not respond to Mom like I did with Soma. Mom did not know how to prompt me to help me keep my mind and body engaged. I could think of what she was saying but could not get my body to move as my mind directed. I became frustrated and tried to escape the lessons. My mom got upset many times and yelled at me. That made me feel so stressed. But mom persisted. Dad made me my own little workspace with a small table. It was easier for me to concentrate and not escape. Eventually I got better at sitting through lessons.

RPM taught me how to leave my own sensory world to actively participate with others for a while. I first had to learn how to listen actively to respond to questions of me. Expectations that I would meet had to be meaningful. I was tired of being asked the same questions over and over again. Questions like how many, what color, and what is it. These were the questions I got all day long at school. I listened better when I heard something new and interesting. Nothing could be better than learning about God. Mom headed toward the right direction when she started teaching me about God. 

After I got better listening I had to learn to bring my body under better control to point to what I wanted to answer. RPM helped me by getting me to think more and plan my movements more carefully. At first it was hard. I had to engage my mind and body together to learn and show I was learning by picking the right choices and trying to spell. Getting a good lesson helped me listen better to Mom. Then I would learn to focus on getting my hand to choose the right choice. At first my hand would move without much control. It would sometimes prefer to choose one side. I am easily drawn to the word I heard last. My hand would pick the last choice. Things started to click when my mom started to teach more interesting lessons instead of quizzing me on basic concepts. I made progress by a lot of active engagement of my mind. This allowed me to leave my sensory world. Learning to think through autistic impulses is hard work. Autistic impulses envelope me in a purely sensory realm where I am alone in my world. I need high amounts of prompting to keep me engaged with you. I want to be a part of what is going on but I am passive because I am not able to get out of my sensory world without your help directing me to leave so that I can interact with others. I am learning to better join the world today. I am practicing by going to school with typical classmates and going out in the world more. I stay more peaceful than I used to. I think RPM has a lot to do with it. RPM is a life changer. It is worth the struggles in the beginning. It gets easier. 

Love, 
Philip 







 Soma and me at first RPM Camp Oct. 2012



My old workspace

Copyright 2017 Philip Reyes.  All rights reserved.

Monday, April 18, 2016

Let Me Spell

Guest Blog by Charles



Hello my name is Charles.  I am non verbal and now I am able to communicate by using RPM so that my voice can be heard.
I am really quite smart and especially funny and amusing.
I am sure people will be amazed that I can spell.
I am so furious to hear that people still need proof that RPM really works to give me a voice to express myself.

Below is a poem I wrote a few weeks ago.

SPELL
SPELLING IS MY TALKING
PEOPLE NEED TO SEE
EVERY FORM OF COMMUNUCATION IS VALID
LET ME SPEAK 
LET ME SPELL

Charles is a 21 year-old college student who lives in north East Midlands in the UK.

Saturday, April 9, 2016

In My Head

By Brayden




IN MY HEAD

IN MY HEAD I AM THINKING.

I AM THINKING ABOUT MY LIFE BEFORE I FOUND MY VOICE.

BEFORE I COULD EXPRESS MY THOUGHTS.

BEFORE I COULD TALK ABOUT MY THOUGHTS.

BEFORE I COULD EXPRESS MY FEARS.

BEFORE I COULD FEEL A PART OF THE WORLD.

BEFORE I COULD TALK ABOUT MY FAVORITES.

BEFORE I COULD TALK ABOUT WHAT I AM PASSIONATE ABOUT.

BEFORE I COULD TALK ABOUT INTERESTING THINGS.

BEFORE I HAD FANTASTIC FRIENDS.

BEFORE I COULD TELL MY MOM HOW MUCH I LOVE HER AND HOW THANKFUL I AM TO HAVE HER IN MY LIFE.

BEFORE I COULD TELL MY DAD HOW MUCH I LOVE HIM AND I AM SO LUCKY TO HAVE THE BEST DAD EVER.

BEFORE I COULD TELL MY TWO SISTERS HOW MUCH I LOVE THEM AND HOW INCREDIBLE THEY ARE.

BEFORE I COULD TELL MY GRANDMA HOW MUCH I LOVE HER AND HOW THANKFUL I AM TO HAVE SUCH A INCREDIBLE GRANDMA LIKE HER.

BEFORE I COULD HAVE A OPINION AND TALK ABOUT IT.

BEFORE I COULD HAVE INCREDIBLE FRIENDS WHO I CAN TALK ABOUT ANYTHING.

I COULD NEVER DO ANY OF THESE THINGS BECAUSE I CANNOT SPEAK WITH MY MOUTH.  

I DIDN’T HAVE A WAY TO COMMUNICATE EFFECTIVELY.  

MY PARENTS TRIED MANY DIFFERENT WAYS TO HELP ME COMMUNICATE.  

THE ONLY THING THAT WORKED WAS RPM (RAPID PROMPTING METHOD).  

I FINALLY FOUND MY VOICE AND I COULDN’T BE HAPPIER.

By Brayden



Brayden is 9 years old and lives in Ontario, Canada with his parents, 2 sisters, his dog and his service dog Gusto.  He is low speaking and communicates by pointing letter by letter to spell his thoughts out on a letterboard.  He has been doing RPM for a year and a half.  He is on a mission to change the stigma of autism and to spread the word about RPM so all autistics can have a voice.  He loves writing on his blog, Life with a boy named Brayden.