I cannot recall a day without a struggle or frustration of
some sort. Most days, they are not too
bad, but some days they can be so overwhelming and seem so insurmountable all
you can do is cry. I’ve had days I’ve
broken down to the ladies in my Bible study so overcome with grief about Philip
never improving, frustration that he’d never be toilet trained, and many other
things. I’d wonder if God would ever answer
my prayers. When you are in the midst of
a struggle, it is hard to see an end. It
is hard to see how any good can come of it.
I’ve learned to just pray.
I can’t say I understand the mechanism behind it or how God chooses to
answer or what His time frame is, but I can say I HAVE SEEN GOD ANSWER PRAYER
AND I HAVE SEEN HIS MIRACLES. This
doesn’t mean that life is now problem free.
But when I am facing another challenge or struggle, I can be encouraged
by looking back at how God has carried me through in the past and blessed me
over and over again.
Today my friend Ellie and her son Nelson came over
again. Philip and Nelson played a couple
games of UNO and Philip even spelled “CONGRATS” to Nelson after he won. They chatted a little and then went outside
to join Carlos on the trampoline and play soccer. Ellie told me she was doing some back-to-school shopping and we got on the topic of schooling. She told me she spent much time praying about
where she should send the kids and how Christian Central Academy kept entering
her mind daily as well as the scripture, “You do not have because you do not
ask.” When they finally met with the
school and asked for help so their three children could attend, they were
granted it- a prayer answered!
I then told Ellie some prayers God answered for me- and now
I will tell them to you. These are just
a few of the many…
When we were in Miami, during the first year of Philip’s
diagnosis, we had a home ABA (Applied Behavioral Analysis) Program. We had a staff of students trained by a
licensed behaviorist named Andrea Holladay.
There were 2 students from the University of Miami and 3 from Miami
Springs High School. The kids took turns
coming to our house teaching Philip the basics of learning- sitting at a table,
answering to his name, colors, shapes, letters, numbers, imitating, identifying
objects and actions, categorizing, the beginnings of speech. They worked tirelessly with Philip 6 days a
week. Philip learned a lot, but at times
it was exhausting managing and training that many people. At the end of the first year, all my students
were graduating and moving on. I
couldn’t bear to think of finding another group of kids, training them again,
and starting over. I prayed and asked
God what we should do next. This is what
His answer was:
At the end of the year, not only were my students
graduating, but Andrea, our behaviorist, was moving to Lakeland, a town in
central Florida. She told me her friend
Juliana Hunt who was also a BCBA (licensed behaviorist) was starting a school. She gave me Juliana’s card, we hugged, said
our goodbyes, and never saw each other again.
Then I dialed Juliana’s number.
It turned out she was starting her school called ISMILE (Institute of
Special Minds Interacting in a Learning Environment) at Poinciana United
Methodist Church in Miami Springs. This
church was located exactly next door to our house! We literally would walk 50 ft from our front
door and there we were! Not only that, but the school was affordable
and had trained BCBAs as teachers.
Philip had a great 3 years at ISMILE.
Our next miracle took longer in the making. Who understands God’s timing? In the Bible God brought about His promise of
a son to Abraham many years after he and his wife were of childbearing
age. Abraham was more than 100 years
old. I wonder how agonizing that must
have been to have to wait that long.
Yet, in another instance, God answered the prayer of Abraham’s servant to
find Isaac a wife even before he finished praying!
I remember immediately after Philip was diagnosed I told
Pastor Van in Miami to please pray for Philip.
He did right then. During Sunday
services, he would often remember to pray for Philip and our family, among
other requests, in front of our church body.
I also sent my church in Buffalo a request for Philip to be on the
prayer chain. I included a video that
showed what autism was like so they could get a feel of what to pray for.
It took many years of praying by many people before we got
our next miracle- one I had never thought we’d ever get. My Aunt Maricel is a true prayer
warrior. She has probably prayed even
more fervently than me and with stronger faith than me. She told me she was praying for Philip daily
and knew God would heal him. I would say
things like “maybe God is using Philip to teach me patience and maybe he is
choosing to answer no to somehow bring me closer to God.” “No,” Maricel would say, “God will bring
Philip good too. You will see.”
I have had others who have specially prayed for us. My friend Jean and I have a habit of emailing
each other on a regular basis to exchange prayer requests and praises. At one lunch meeting she told me that as much
as she can pray and empathize, perhaps I need to find a support group with
other parents going through the same thing.
Her advice, given in love, is what spurred me on to start my current
autism support group.
My Wednesday
morning ladies’ Bible study has been instrumental in lifting us up in
prayer. Nichole, Deb, Connie, Paula, and
Maricel have been my front line of prayer.
Kit, Lena, Jen, Janette, Amanda, Eun Kyoung, Betty, Kim, and Leigh have
also prayed for us. Our Bible study
meets and prays every week. There are so
many requests we have brought to God and seen remarkable answers. We have prayed people through cancer, job
searches, adoption, tragedies, deaths in the family, and for God’s peace, among
many other things. We’ve seen God answer
over and over in ways He is glorified by His amazing grace and goodness to
us. I believe the many prayers for Philip is what lead us on our path to Soma. During the time of waiting God was teaching
me many things: trusting in Him, patience, perseverance,
mercy, and compassion. He was also
building a large support network for us and training me to eventually help
others like Philip and our family.
I have mentioned before how instrumental my autism support
group has been in helping me discover Soma.
You can read about it here. In the
days leading up to our trip to Austin to see Soma for the first time, I emailed
as many people as I knew, who knew about Philip, to pray for us. I sent them a video link of Soma's segment on 60 Minutes and asked for prayer that Philip would respond to this method. I myself was so nervous it wouldn’t work, but
hopeful that it would. Even though I
felt doubt that it would work, I knew in my whole being that God could do as He
pleased. He could help Philip through
Soma. So I, along with countless others,
prayed and prayed. I know my Bible study
met the Wednesday without me and spent a long time praying for us while we were
in Austin. I literally could feel their
prayers as Philip went from tantrumming the previous day (Tuesday), his first
time with Soma, to sitting through his lessons and amazing us with his
knowledge that was tucked away from us all these years and just now releasing
itself for the first time. I came away
with tears of joy each day.
As you know, our lives have been changed for the better
through God’s answers to prayer. In the
next few days I will post our letters of prayer and praise during our first
trip to see Soma.
Philip and his teachers from ISMILE
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