For the Love of Reading

Guest Blog by Chana and Meredith

Chana

From Chana’s mom, Meredith:

I am ashamed to say it, but I had never read a book to my daughter Chana. Well, not since she was a toddler. I gave up reading to her around the age of 3. I just figured she didn’t understand what I was saying and she couldn’t seem to tolerate sitting for a book unless I sang the words.

I am one of those “intense” autism moms. Our non-verbal daughter has received thousands and thousands of hours of therapy... ABA, Floortime, Son-Rise, OT, Speech, PT... you name it... we tried it... And yet, until she turned 14, I had NEVER, EVER -- not even once -- read a “real” book to her.

In the past 20 months, since we started RPM, we have joyously read many NOVELS together. Hundreds and hundreds of pages shared. It is a dream come true, but it took nothing more than my belief that despite a disinterested or even resistant exterior, she really was listening. At first, I followed her around a bit. We built up what Soma calls her “auditory tolerance.”

Now, at the age of 15, Chana can sit intently while I read several chapters in a row, stopping to ask her occasional questions. Less than two years ago, I was sure she couldn’t understand a simple phrase like “The library is open today” and now we go there to pick out books together.

I now know Chana loves non-fiction. Our latest read is “I Am Malala.” We are reading the Young Readers edition since Chana has told me she is not a fan of scary stories or war stories. It is a marvelous book about the bravest of young women. Malala Yousafzai won the Nobel Peace Prize in 2014. So, for this blog, I asked Chana to fill in a sentence.

The assignment was to change “I am Malala” to “I am like Malala because _____”. Chana’s answer:

I AM LIKE MALALA BECAUSE I MAKE DECISIONS IN FACE OF ANXIETY.

Chana has written about her anxiety many times since starting RPM. She is one of the calmest non-verbal autistic people I have ever met, but she says her anxiety is often deep and overwhelming and it is due to her autism. Thank goodness she now has a way to express it. And thank goodness she can now hear the words of courageous souls like Malala, whose stories of bravery can be her friend in the face of the fear she feels.
I hope all parents of non-verbal children will read to them. Read even if your children don’t show their love of it at first. Read to empower your children! It’s a gift all kids deserve. 

I Am Malala

By Philip

Malala is a hero to me. I think she made many courageous acts to get an education and insist on the same right to education for all mankind. I admire how she spoke out against the talk of the mullahs who said it was wrong to educate girls. She followed Allah and the Koran. She ate halal. She did not disobey her religion. The Taliban made up rules to abuse people. The men of the Taliban were the ones applying their religion wrongly. Peace was nowhere to be found under the Taliban. Learning was banned for all girls. Malala would not stop her education or saying the Taliban each day committed terrible injustices. Pakistan was a violent place to live in. Malala risked her life to save the right to go to school. Malala was shot in the head for what she stood for.  But God miraculously saved her. The person who shot her was forgiven. I admire her for letting peace put her mind to good use instead of revenge. Learn from her example, not from terrorists. Malala became even more recognized and brought her cause to the whole world's attention. She spoke at the United Nations. Pakistan passed law to educate all boys and girls. Malala’s power was more power than the terrorists. I am Malala. 

*Lisa's note- Philip has been learning about Malala Yousafzai from her memoir "I Am Malala" and from watching news specials and Malala's speeches.  She is a role model for so many, and I would say especially for Autistic children.  Even though Malala is not Autistic, she made her voice and position heard in a culture that denied women a voice and an education.  The world listened.  Because of her bravery, Malala has been able to affect the change she so passionately believes in.  There are still many Autistic voices needing to be heard in America and all over the world.  We must do all we can to help pave the way towards better methods of communication and accommodation, quality education, opportunities for inclusion, and acceptance of all Autistic people as contributing members of society.  Malala inspires us to bravely speak and act to bring about the change we want to see.