Recently Philip has had to remind me on several occasions to
keep telling his story as I have gotten a little lax on keeping up with the
blog. He wants to educate people about
autism. Today I asked Philip what he wanted
to blog about. He spelled, “Autism and
Trials.”
This is a difficult subject.
While most of the time I choose to look at the beauty of autism and the
wisdom derived from learning a new perspective, the reality is that there are some
very very hard things about it. I do not
know if Philip will ever feel completely “at home” in this world. The bombardment of his senses by our modern society gives Philip little rest. And when
it comes to Philip’s education, it has been like trying to fit a square peg
into a round hole. We have yet to find
the perfect balance to accommodate Philip’s special way of communicating, his gifted
intellect, and his uncooperative body and impulse control.
Today’s post took about an hour for Philip to write. Though he chose the topic himself and wanted
to finish it in one day, Philip often got upset and had to run off to take a
break or cry. I was not always able to
get more of an explanation on some points and I feared pushing would increase
his upset. I mostly allowed Philip to
write uninterrupted until he signaled he was finished by spelling “the
end.”
These are Philip’s words on the trials he experiences daily:
“I am in pain all the time.
I hear every sound at one volume.
I see people’s taunts and I am fearful. (When asked what he meant by taunts, he
spelled “angry faces.”)
I am each day made to feel like I am not intelligent.
I am each day made to feel I do not matter.
Often I am so terrified of senses too aroused.
I am tired of attacking stims all the time.
I each day have strong emotions that affect my relationship with each person.
I each day need someone so patient to work with me.
Each day is so hard.
The end.”
Philip’s words, so honest and heartbreaking, are important
to hear. His words give me a much better
understanding of his actions and a greater compassion for him and others like
him. The greatest gift communication
gives is the ability to be known.
Knowing that Philip suffers makes me want to alleviate his suffering. It takes my mind off my own perspective so I
can put him before myself.
I take comfort, and I hope Philip does too, in several scripture
verses in the Bible. These verses show that suffering does not negate blessing. 2 Corinthians
4:8-10 reads, “We are afflicted in every way, but not crushed; perplexed, but
not driven to despair; persecuted, but not forsaken; struck down, but not
destroyed; always carrying in the body the death of Jesus, so that the life of
Jesus may also be manifested in our bodies.”
It has been a God-given miracle to witness Philip being rescued from his
silence. I am confident God will
continue to work mightily in him as he grows and matures.
James 1:2-4 reads, “Count it all joy, my brothers, when you
meet trials of various kinds, for you know that the testing of your faith
produces steadfastness. And let steadfastness have its full effect, that you
may be perfect and complete, lacking in nothing.” I am in constant awe of Philip’s maturity for
his age, especially when it comes to spiritual matters. I believe Philip has an even more intimate relationship
with God than I do. He has told me that
during the years he was silent to the world, he always had God to talk to. For that I am extremely grateful. Philip teaches me every day. It is from his trials and sufferings that he
has gained such wisdom. I am confident
God does not waste an ounce of pain. He
works all things for our good (Romans 8:28) and uses the experiences we have to
prepare us in the plan He has for each of our lives.
At the Filipino-American Association Christmas Party
No comments:
Post a Comment