This year, Philip made Christmas presents for the family by
writing poems or letters for them. For
my Dad, Philip wrote a sweet note in which he appreciated my Dad’s
pictures. He wrote:
Dear Lolo,
I am touring places with you when I see your pictures. I like them a lot. I am interested in photography. I want to accompany you on your shoots.
Love, Philip
On Christmas Eve, we had dinner with extended family and family friends at my
parents’ house. After dinner, my Dad
showed some of us his pictures he took on trips to Brazil and Thailand. He was trying to figure out which ones to
enter into a competition and what he should name them. My
Dad picked out this photo he took in Thailand as a possible entry. He
asked Philip, "What do you think I should name it?" I held up the
letterboard for Philip as he spelled,
"Catching Light Opulence"
We
all sat in shocked silence for awhile. For me, my thoughts were a
combination of "Wow, that title really makes you think about the
picture" and "How did my 10 year old son come up with that!? How does
he even know what opulence means?"
My
Dad was blown away. He loved the title and decided that should indeed
be its name. My Dad was now having fun with Philip and decided to ask
him to title some other pictures. More and more of our family came to
join in and see what all the hubbub was about. Dad would ask everyone
what to title each picture. Most of our suggestions were pretty
mundane: monkey on a branch or lunchtime. Philip continued to come up
with the best titles.
"I Am King"
"A Fruitful Day"
"Each Vine is Alive"
For
the last picture, my Dad asked Philip why he didn't mention the
monkey. Philip spelled, "The monkey's tail is being camouflaged by
the vines."
My
Mom was impressed with what she was witnessing. She asked me, "Aren't
autistic people supposed to be unable to generalize concepts? They said
if they show someone with autism a picture, they focus only on one
aspect, such as the doorknob of a door and not the whole picture.
Philip sees the whole picture and more than any of us too."
It
certainly does seem we are all learning a lot of things about Philip
that are contrary to the book or "what he is supposed to be." I think of the last
picture above as being an illustration of the individual being
camouflaged by autism. What we readily see are the symptoms of autism:
flapping hands, jumping legs, unfocused eyes, and a mouth that does not
utter intelligible ideas. It all too easily masks the
sharp mind, the keen eye, the gentle heart, and the unique personality of each very
much alive human being. It is about time we focus on the human being and
treat autistic individuals as individuals, not autism.
On
that note, I leave you with an extra treat about Forrest Sargent, a 22
year old non-speaking autistic photographer who also communicates via RPM on a letterboard. I want you the reader to know there are many autistic individuals, even non-speaking ones, living meaningful and satisfying lives. But I also want you to know that for each person like Philip and Forrest, many more non-speaking autistics have not yet been given this opportunity. They desperately need our help to bring effective communication into their lives. It makes a world of difference. Click here to read Forrest's inspiring story from frustrating silence to liberating self-expression through RPM and photography in Seattle's Quirksee magazine.
What an amazing way with words, Philip has! When I read the words of Philip and Oliver and others who cannot speak but communicate through writing it is as if they distill meaning down to just exactly the right words. We who talk take our words for granted and use so many frivolously. Anyway, the photo of the flower and Philips title made me teary. Quite beautiful!! Thanks for sharing Philips words with the rest of us!
ReplyDeleteThanks for sharing your comment Christine! Your comment made Philip happy! I love your imagery of distilling meaning down to the exact right word. His word choices pack a punch I am constantly in awe of. I love hearing from Oliver as well. When our kids write, you cannot help but listen to their powerful words!
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