Question from C in Philip's homeroom:
1) What is it like not being able to communicate with people? 2) What is it like having no control over
your body?
Philip's responses:
1) I am better now that I can type. People who can't
communicate are sad. I used to get angry mom could not make me talk. I made
many imaginary friends. Not being able to talk is really frustrating. I think
fast but my mouth can't say the words. I pass the time writing the thoughts in
my mind. I am practicing what I would say. Peace came to me when I started to
spell my thoughts. I am talking now (through typing) and it feels peaceful to know people can
understand me.
2) Having little control of my body is maddening. I am always
getting lost in outer space. I feel like there is no gravity. My body has
little mass. I have to concentrate hard to move purposely and slowly. Even
typing takes patience and precision. It is hard work for me.
Philip revised a previous blogpost about
flapping and poor control over his body to give further insight on his movement and body control:
Flapping
I love to flap my hands. I flap to feel my body in
space. No one goes through the trouble I have to feel my body well. Dare
to feel each moment floating weightless in space. I am light and my
movement is erratic without gravity making my movement steady. Each day I go
crazy not knowing how my body will act. Most people have portly muscle
mass to feel their own weight. I do not. I often feel like a bird
about to take flight and it makes me flap. I love the sensation of my hands
flapping. My hands flap when I am happy. They flap when I am momentarily
stressed. They also flap to music. Flapping is important to me. I flap
like a bird to feel free from my body. My body is naughty. It acts on impulse
too much. No one can discipline it. It has a mind of its own. It makes
messes. It acts like a jerk. My body feels tension from
stress. Many times I can't feel my body.
I am unable to do many things people do without thinking. Lastly, my weary
lament for my Autistic friends who can’t communicate kills my soul. Living with autism is hard. I sometimes
would like to try living without it but I can't. Living peacefully requires me
to accept myself, autism included. I mean to make the most of what I have
been given. I have been given a strong mind. I have a mission from God. I
am trying to educate the world about autism. No meaning comes from being
negative about autism. My slavery to negative stereotypes is over. I am free
peacefully pursuing my dreams. Moments are still very challenging but I know I
can persevere and someday peacefully make a beautiful life for myself.
"Today try to make our lives better by understanding us and accepting us as we are. Include us in your lives. Talk to us even if we don't respond. We are listening.
I am storing up happy memories with every person's kindness."
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