Monday, December 14, 2015

About RPM

By Lisa

It has been an exciting week having Philip's essay published in The Buffalo News and subsequently picked up by The Mighty and Yahoo News.  We have received so much love and positive feedback, a few skeptical comments (and that's ok), and lots of questions.  Today, I'd like to give you my overview of what RPM is.

The essays Philip has written in this blog were typed letter by letter on a keyboard and saved onto a tablet computer.  Earlier essays were spelled on a letterboard and transcribed by me, his mom, into a notebook.  Philip was unable to express his thoughts until our family learned Rapid Prompting Method (RPM) from Soma Mukhopadhyay.  Prior to RPM, Philip had many therapies and interventions standard to autism:  Applied Behavioral Analysis (ABA), speech therapy, occupational therapy, alternative medicine, Relationship Development Intervention, and special education.  Although he gained something from each thing he tried, it wasn’t until we used RPM that Philip could express what he was really thinking and feeling in ways most others could understand.  It finally bridged the communication gap between Philip and us. 

RPM was developed by Soma Mukhopadhyay, (affectionately called “Soma” by people who have come to know her) to teach her own autistic son Tito in India.  In India there were not the many therapy options I have had in the United States. According to Soma, when she asked the doctor what she should do for her son after receiving the autism diagnosis, the doctor replied, “Keep him busy.”  So Soma took him at his word and made the most of her time figuring out her son and coming up with a way to teach and reach her son.  After spending some time with Soma through organizing workshops in my area and then training with her in Austin, I have come to the conclusion that she is one of the smartest people I have ever known.  Her observations about how Tito interacted with his environment through the different senses, as well as her understanding of his movement differences, helped her come up with the practice of what is now known as RPM.  When Tito was 12, he wrote his first book.  From then on, mother and son were to be recognized and sought out for understanding autism and how to harness the hidden potential from autistic people who could not communicate in a conventional manner.

So what is RPM?   RPM is a teaching method that addresses the difficulties in sensory processing and executive functioning that often accompany autism and other disabilities.  An RPM session consists of an age appropriate lesson such as a lesson in science or social studies that a typical developing child might take at school.  The lesson is given in a way that stimulates the senses to focus on what is being taught.  Interesting lessons are told in engaging ways, like a story, rather than in a monotonous droning way.  Key words or illustrations are written on paper in front of the student to stimulate visual learning.  The student is asked to respond in a back and forth manner to demonstrate understanding of the material.  The student responds first by making choices between two written answers.  Eventually the student learns to spell on a letter stencil, flat letterboard, or keyboard.  Prompting is often necessary to keep the student focused, initiate movement toward the letterboard, and encourage the completion of the task.  Contrary to what might be thought, physical prompts are not used to help lead a child to an answer.  You won’t see hand-over-hand contact in RPM.  The teacher treats the student respectfully by believing he is capable of learning at an age appropriate level and using regular conversation that is not reduced to commands and praise for compliance.  The combination of knowledge through a broad education, reasoning skills from interactive learning, and respectful treatment through presuming intelligence and competence in the learner, provides a springboard to meaningful communication of original thoughts and feelings. 

What is RPM not?  RPM is not a cure for autism.  Its goal is not to make a person lose his autistic qualities.  Rather, the goal is to work in cooperation with the autistic neurology with its stims, alternate sensory patterns, and movement differences to accommodate regular learning and communication.  Ironically, the results of RPM have helped Philip alleviate the most distressing aspects of his autism.  Over the 3 years of doing RPM, Philip’s self-injury diminished to where he has not banged his head in over a year.  Philip finally completed toilet training.  The boy who could not tolerate going to loud places like an auditorium or trying new activities is now fully immersed in going to concerts, sports events, and theater, and getting involved in biking, ice skating, and soccer.  He is also able to be included in mainstream learning and activities.  RPM is not an easy miracle.  Because the child cannot help himself in the beginning, success is really dependent on the child’s primary caregiver, often a parent, being committed to spending time learning how to implement RPM, making good lessons, and practicing regularly with the child.  Gains come only with consistency and hard work.

We will be forever grateful to Soma and Tito for sharing RPM with the world.  We would not be where we are today without them.

To find out more about RPM, visit HALO's website.  You can also view videos showing Philip's progress so far using RPM.


Meeting Soma for the first time- October 2012
 


         

Monday, December 7, 2015

Peace

I am more at peace lately. Peace in my life is letting go of my worries and making God center of my life. Making autism center is not helpful. Man should never be the center. Perfect wisdom comes from God alone. Peace comes from really teaching me about God. My mom reads me the Bible everyday. I learn that God is at work teaching people about His great love. He loves us without ceasing. I am peaceful knowing God accepts me no matter what. Mom accepts me like God does. She loves me as I am right now. This is why I can start to feel my anxiety fade away.

I make more daring decisions now. I used to be afraid of almost everything. I feared a beach with its crashing waves and many people. Now I love playing in the sand and sea. I used to have meltdowns in a noisy auditorium. I feared I would make a terrible scene. Making a scene was a bigger fear than the actual noise.


I have developed some calming strategies. One is to pray. Handing over my worries to God really helps. Wanting to please my teachers has made me not behave as badly as in the past. Naturally I am unable to control my movements and stims well. But now I am able to be in control a little more. I am more able to be calmer in new situations. I am not so fearful of making mistakes. I know I will still be loved by God and by those who see me not as a bad boy but as the real me and still accepts me. I am more courageous. I am facing fears of failure by day to day understanding I will be ok even if I fail. God always loves me.

Philip learning to skate at SABAH

Copyright 2015 Philip Reyes.  All rights reserved.

Thursday, November 26, 2015

Thanksgiving 2015

By Philip


This year I have so much to be thankful for. God loves me and has been so kind to me. Against many odds I was able to take regular classes this year. A few years ago I was in a segregated school and learning about letters and numbers up to 5. I was learning nothing new. Another waste of a year. I was measuring my life by the attacks I made on my teachers in protest of a good mind being made to address the most mind numbing work. I had been identifying coins for the last 3 years. It was boredom to say the least. Now I get to learn something new everyday. Practicing how to live in the real world means following how neurotypical people get to live. I am now getting to live among them.  I love it. I have to study like the next person. Opportunities are opening up to me everyday. I am blogging, writing for magazines, getting involved in autism missions, and doing more fun things. I can now ride a bike, go to sports events, go to church and Stockade, and I have more courage to try new things. I am thankful for so many blessings. I love that I now have a voice and have peace about being able to have more say in my life.

Watching a Michigan football game with Dad (first big sports event)


Copyright 2015 Philip Reyes.  All rights reserved.

Saturday, November 21, 2015

Improving My Way

By Philip


I am peaceful today because people are treating me a lot differently than they used to. Today I went bowling with my friend Max. I was happy because Max's dad made conversation with me and made me feel I am important. He said I helped him see Max in a new light. I am doing my best to make a difference. I am pleased when I can see how I have helped.

I have heard of an interesting idea called Neurodiversity. I think it should be the new way of seeing autism. Neurodiversity is the idea that autistics have a different neurology and shouldn't be expected to become a person with a neurotypical neurology. No one can be cured of autism. Therefore we should stop making cure a goal. Instead let's try to accommodate our difficulties in communication. To continue to use therapies that don't respect our neurology such as ABA is like trying to beat a dead horse. They don't allow us to grow how a person should. Peace comes when I can see meaningful changes in my life. This year I have been able to join regular classes at school. I am proud to be able to attend because last year I couldn't because of my behaviors. Now I can handle myself much better. I love learning new and interesting things. I also can do things without as much anxiety as I used to have. I can go to crowded arenas, meet new people, and try new activities like biking and ice skating. I am still autistic 100%. But I am making progress like a human being should.

Copyright 2015 Philip Reyes.  All rights reserved.

Tuesday, October 27, 2015

Caring For Friends


By Philip

I am so happy to have friends. Caring for my friends is accepting them as they are and helping them fare better in life.  I love being able to help. Caring for my friends addressing communication is giving my life an honest purpose. I most desire to make rpm (Rapid Prompting Method) and communication for autistics a priority. I want my nonverbal friends to have a voice to make their thoughts known and have more control in their lives. I have had my life change because of rpm. Meaningful communication came into action. Before I could do rpm, I was stuck in my mind. No one knew how much I knew and how I wanted to reach them to let them know I was with them, participating in their conversations even though I looked not to care.  I am heartfully advocating to give my nonverbal peers a chance to find their voices. Advocating for creating opportunities to make rpm available and accepted at school is important. My school practices rpm a lot. I love it there. Having teachers who understand me makes a purposeful education possible. Peace is achieved when communication is heard. I would like to help my friends escape their silent prisons and enter the world to enjoy it like everyone else. I long for a world in which all people have a voice. I hope to make more friends as I eagerly accept my life's quest.  Friends make life happy and memorable.


Copyright 2015 Philip Reyes.  All rights reserved.

Wednesday, October 21, 2015

Body Language

This post is a response to a comment from Anonymous:

Hi Philip! Since you are writing about some myths can you write about this? I hear very often that autistics have difficulty reading body language of those around them, especially in social interactions. But my personal experience is that autistics are very perceptive and often pick up on very small details. What is your experience?

I am very good at reading body language. I am good at reading facial expressions too. Many times I have to maintain my distance from people because I have too hard a time not getting distracted by small details like a fearful grimace or an unfriendly sneer. Those faces make me feel badly. I like faces that smile and relax. I am so soothed. I am sensitive to the moods of others. The hardest emotion to see is anger. It’s the worst because it makes me fear being helpless and unable to think. You should really control your anger around us. We can easily lose control of ourselves. In my case, I can get aggressive with people or injure myself. I practice staying away from angry people. It is good for me to be around positive people. Making life more relaxed and loving is good for me.

Copyright 2015 Philip Reyes.  All rights reserved.




Sunday, October 18, 2015

Philip's Letter to Parents

This is a letter from Philip to parents who have contacted him to address their fears and worries about their children diagnosed with autism. 

Dear Parents,
As an autistic boy, I want you to know I am happy. My autistic neurology makes me think very differently than most people. I can sense the world keenly, making me a very observant person. People make wrong assumptions about people who don't act like a typical person. Making assumptions about something as important as your child is dangerous if you make the wrong conclusions. I have lived the consequences of my parents' wrong assumptions. Being thought as retarded and in need of remedial education assigned me to many years of ABA and useless therapies based on neurotypical assumptions of autism. Man assumes many things they don't really know. The best way to know someone is to hear from them personally. The only way to hear from me has been through RPM (Rapid Prompting Method). I think most autistic people can make use of assistive means to communicate. Parents should look into learning more communication methods. Body awareness programs would also help a lot. My parents have done a lot of therapies. Making life as normal as possible and helping us to communicate is what makes the biggest difference in our lives. Please teach us interesting things.  Don’t just address the things you want to fix. Accept us the same way you want to be accepted yourself. Mainly, maintain an attitude of love and patience towards us. Making us feel loved is an essential part of helping us meet the challenges of living in this world.
Love,
Philip

September 2015

Copyright 2015 Philip Reyes.  All rights reserved.